Got Oxygen?

From day one, I was the patient that pretty much did everything they were told not to do. I gave my doctors almost more anxiety than I have, because I was so rebellious. However, I love my primary doctors, they are always very truthful with me, and I know when to be serious and actually listen. A good doctor is very hard to find. The doctor that finally listened, did my first heart cath, and diagnosed me was not a good doctor. I will always be grateful, he is great in the operating room, but he will not listen to you. He will tell you the worst, and hand you a plastic bubble to live in, which is what most have done. “You have maybe two years to live” are some of the first things he had said to me. From there on out it was “you have to be on this medication” “No you cannot do that” “You probably have a blood clot” yada yada yada. After comparing with two other doctors, I got pretty good at being a BS sorter, and fired him. He wanted me to not live a life, but just live under my diagnosis, and in his office with his rules.ย  While it’s important to listen to your doctors who know your situation, you have to be really good at not putting yourself inside of a medical prison.

I was very unhappy in my hometown; like addicted to Xanax and didn’t want to live anymore unhappy. I knew where I wanted to be, and I already could hear everyone’s opinions. “You won’t be able to breathe!” “You won’t be able to even live!” “The altitude is too high!”ย  Even then, this is the place that called to me. When I broke the news to my primary PH doctor who I love, I built up my defensive side ready to beg him to see the good side to where I was wanting to move. He said, “When you vacation up there, do you have trouble breathing? Will you have an O2 sat reader with you at all times? How far away are you from a hospital?” After answering all his questions, he said, “If that’s what you want.”ย  My mouth dropped. My doctor grasps the concept of my mental happiness.

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Yes, I live in 10, 350 feet elevation. No, I am not “barely living”, and yes I do get short of breath here and there. I get altitude headaches, and some days, walking around the town is just enough. But I am absolutely loving it! No, I’m not saying you should go live on the top of a mountain to love your life. What I am saying is that you should be doing what you love, despite what your crappy lungs think. Hazel Grace still flew to Amsterdam with Augustus despite her doctors yelling about it. Do not let your crappy lungs be an anchor within your body.

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Moving here was no more rebellious than what I was doing everyday in my hometown. Five years ago they said I wouldn’t live another two…so I guess I’m just not quite inside the lines of what a PH patient should be in their eyes. I’m very grateful for my doctors, and their support in my new life! Sooo, my loves, if you follow me on Instagram you saw that I am giving away a water bottle (pictured above) from my store! I think it’s perfect for PH patients with the little phrase “Got Oxygen?” on it. Whoever wins this bottle, I don’t want you to think about the risky altitude, but the mountains in your life, the challenges, the new risks to overcome, and of course maybe starting a new life. Plus, it’s really freaking cute. If you want a chance to win this super cute bottle then follow the directions below:

Follow me on Instagram @haleyann92

Follow my store! ๐Ÿ™‚ @mainstreetmercantileredriver

Then shoot me a DM on Instagram (or email haley.ann.92@gmail.com) saying you followed both, so I know to look for you!!

I will pick from who follows both, and the winner will be announced Monday July 27!! Have fun lovelies. ๐Ÿ™‚ Song of the week is Colour My World by Chicago.

-haley.

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2 thoughts on “Got Oxygen?

  1. Hey, Haley! I am so happy I read this post. I’m moving to Salt Lake city, utah in january for an internship at the children’s hospital and I’ve been questioning my decision ever since I accepted the position. My ph specialist is supportive of my decision, but definitely cautious. I have to take an altitude test a few months before I leave to see how my lungs will react to higher altitudes. Hopefully I won’t need to adjust my treatment… Did you have to have this test done? You are such a great guide for dealing with this disease and I am so thankful for your strength.

    • Emily, So glad you are still reading! Congrats on accepting your position. ๐Ÿ™‚ My PH doctor was the same way! However, I didn’t do an altitude test. I hope everything goes alright with that. Your lungs will definitely not have a great reaction, but as long as you have O2 available to you, and take life slow, I think you will be fine. There is not one doctors office where I live, and the nearest hospital is 45 Minutes away (weaving through mountains of course.) So I think you will be fine. ๐Ÿ™‚ Best of luck to you girl!! -haley.

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