Holy cow! It’s finally here; Conference week. I’m heading off to Indianapolis in about seven hours (its almost midnight)….and I need to pack. I know, how shameful. Rocco is feeling anxious, and its making me sad to leave him, yet anxious as well. Most of you know I was nominated, and won The Pulmonary Hypertension Association’s Outstanding Young Adult award for 2014. I am extremely grateful, and proud. I know we are always talking about how much this disease sucks, but really, I want to thank my disease for what it has done to me. Its given me a privilege to dig way deeper into myself than I would have ever done before, to find out who I truly am, its taught me what it means to survive, how fragile life is, and to conquer. I am thankful for my shitty lungs.
Sooo, since I will be on the road (and worrying about Rocco 24/7) I don’t want to leave everyone out of the experience! I will be vlogging the whole time. Vlogging? Yes, vlogging. I guess I will take a Claire Marshall whack at this, and see what y’all think! I can’t wait for everyone to see the experiences (including Funky Bones park from TFiOS), and until I can upload it all you can follow me on my social media sites!
Song of the week is Boom Clap from the TFiOS soundtrack because this is the song they played while Hazel and Gus arrived at their destination in Amsterdam. Such an exciting song! Find, and follow me to keep up with this week! Have a lovely day everyone!