Lately I’ve been catching myself saying, “I can’t do that because…” , “Lord knows what would happen if…” , and blah blah blah. It hit me how much I’m limiting myself because of my dysfunctional lungs. I don’t even try, I just instantly throw on the brakes. Therefore, I’m always on the sidelines, I’m always watching, I’m always wishing that I could do such fun stuff…screw it. I’m doing it. Its JUNE! Its summer! It’s a beautiful time of year to crawl outside of your cave, and look into things you’ve never considered. Am I suggesting a running with the bulls? Of course not. But why, why do we make our priority in life to just survive it?
We really tend to find ourselves existing within the limited walls of our disease. We make excuses, we follow doctors strict orders, we take those pills and endure these side effects, and we are therefore living in a disabled rutt. Sounds messy doesn’t it? Thats because it is. This is part where doctors usually want to strangle me. The whitecoats (doctors) are used to seeing the worst of the worst, and prescribing the up most strictest care. They have to, and I respect it. But they really do forget about the soul on the inside of the defective body. I’m not letting my shell rule my life; end of story. I will take care of my shell so that I may continue to have a life, and I will be careful with my shell, but I will not enter the twilight zone of getting so lost in the care for this disabled shell to keep living only to realize I have no life. Make sense yet?
I’m getting better at taking my pills. Stay on top of your meds, endure the stupid side effects, and communicate with your doctor.
My oxygen goes where I go, just in case. Yours should be a travel companion too, despite whether you wear it all the time or not.
I plan for the worst, and hope for the best. You should be doing that as well. Think through what you’re doing, and the possible outcomes.
Educate yourself. The more you know about lungs, blood pressures, hearts, medication do’s and dont’s, the absolute better.
Know your body. Truly know what you can and cannot do. I go into over 10,000 elevation every summer because I know I’ll have no issues. What happens if I do? I have all my meds, oxygen, BP&O2 monitors, and I know where the nearest hospital is.
Do what you love. Try everything in small quantities, and don’t push your limits.
There is so much more to life than just surviving it.
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