I’ve become one of those people who follows “survivor” accounts, quotes, and what not to stay updated on all that cool lingo. However, with Pulmonary Hypertension, we are on life-sustaining treatment which I guess in a way means we are constantly surviving. I have trouble calling myself a “survivor” because I’m not quite done yet.
It may seem like a negative outlook to many, but a lot of us still have this same view whether we realize it or not. PH is still barely caught in the doctor’s office being its usual invisible self. Even after diagnosis, there is still no cure available. Treatment is built around the idea of making it to the end of the day, and not falling apart. People love to say that “we are survivors” yet I really want to say “of today. We WILL be survivors.” Now that sounds better. I’m totally guilty of the survivor talk too though. It’s not a bad thing at all, but it’s highly unfortunate, and can be changed.
Lets rewind for a minute. Someone asked me someday how long I’ll blog until I completely focus on school (which I finally quit.) Three years ago, I would’ve buried my head in my schooling, and opted for the more stable job. However, I’ve began to step back, and analyze things more closely. This blog is my life, and what I want to DO with my life. My writing, my goals, and my PH community are what keep me going, and I’m not stopping. I’m aiming for lights. And overall, this all ties back into calling ourselves Survivors. If it wasn’t for not having a cure, for suffering through treatment, and mental trials, I would have nothing to write about. This keeps me going so one day we can call ourselves Survivors rather than Surviving. All of this will get out there one day, spark interests, get attention, get people thinking, money donated, and hopefully curing Pulmonary Hypertension. We will Survive, and we will be a Survivor one day saying that we went through our time “surviving” with a treatment, and became a Survivor with a cure. The catch? I need your help getting there. You know what to do y’all. I’m glad y’all are my community of supporters. You are the absolute best.
Check out the song this week, I.G.Y by Steely Dan. “What a beautiful world it will be, What a glorious time to be free.” Check it out y’all.