Life With PH


So, my life is a bit crazy right now. I promise I’ll return to writing at the end of this week. Sorry y’all!

Anyways, the contest winner for “Something Positive About PH” was Melissa Purpura, because what she wrote was so beautiful. Every person should take something positive from their diagnosis. Melissa is LIVING proof. Congrats Melissa! I will let y’all read what she sent me below. Enjoy your day, and stay positive!

“My name is Melissa and I’m 29 years old. In 2011, my life was forever changed but in the last year in particular, drastic changes have occurred that have made me take a really close look at what matters most in life. Nobody wants to be sick at any age, even with a simple cold, so when you hear the words “incurable,” “rare,” and “terminal,” along with a disease called Pulmonary Hypertension, which you thought was just asthma, you get thrown for a loop. Soon comes the time when they are delivering oxygen supplies to your house, ordering specialty medications for you, and you are overwhelmed for a while. Since you never know how you are going to feel from one moment to the next, making plans is nearly impossible and eventually friends start leaving or treating you like the plague. Isolation sets in as well as the stages of grief, but then you learn to stand up and fight and not to let your disease win. Having PH has been a blessing in disguise for me in some ways. It has taught me how to give to others with no reserve, to love everyone with no boundaries, and to always pay it forward.  While I might not be able to participate in some of the activities I once did, it has allowed me to pursue some creative activities that I have found very fulfilling, like writing and getting back to my roots in playing instruments. It has allowed me to express myself and to show others that we must believe with all our hearts that there is a purpose for each and every one of us; no matter how much time we have here on Earth. It has also positively influenced me in allowing me to step outside my comfort zone and do things I would not have done before, particularly travel to places in US.  It has shown me that there should be no limitations on life and that we should take advantage of every moment we have to be spontaneous and do the things in which we could only dream of. It has created some wonderful memories for me.  Without being diagnosed with PH I never would have taken some trips to places like NYC or Nashville or Las Vegas and met so many wonderful people from around the world. So thank you PH for showing me love and kindness and for showing me how to live life for the moment and how to give myself to others in hopes of leaving a lasting impact in this world. Also, thank you for showing me that one person can make a difference, even if it only in a small way.”



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