Life With PH

Im Baaaaack!

Hellllloooo Strangers. Yea, its been over a whole month I know. With family issues, to the end of school, to my health…my time was definitely all over the place and limited. BUT, school is out, everything is resolved and I’m back. 🙂

A little over a week ago I had my first episode in over a year and a half. By episode I mean my body not being able to get oxygen through fast enough, my heart rhythm got chaotic, I had literally no oxygen getting anywhere in my body (including my brain) so I passed out. Luckily I was at home and not alone. How did it happen? Well, I haven’t been following my medication as closely, I had little to no sleep and I had merely bent over to grab my cat. It was insane how fast it happened with so little physical activity. An episode is a very quick and terrifying experience because there is such an immense amount of pain running through your body and there is nothing you can do about it at the time. Your body literally just has to shut itself off in order to relax and start over. The “shutting off” is the scariest part. You don’t know it’s happened until you’re waking up from it. It’s almost like a weird dream and for some odd reason you’ve lost touch with reality around you having no idea where you’re at and why. After most of my episodes I’m usually able to catch my breath and I go on about my day but I’m careful. This episode was very different. My toes were a blue/purple color and I had to sit a few minutes in the chair I had passed out in, not even having enough energy to talk. Standing was very hard also, and I barely made my way to the front of the house to get my dad’s attention.

phHaley_36Credit to Bailey Dale Photography

I guess it shocked not only me, but my friends back into the reality that I can’t just do whatever I want with my PH. I still have to follow the rules and be consistent to be healthy. Usually, its other people we get mad at for not seeing our disease..but sometimes we forget its there too, until it almost kills us. Be careful and consistent friends. We are strong yet fragile beings.



4 thoughts on “Im Baaaaack!”

  1. I’m glad you are feeling better. You are the 1st person I’ve met with PH and take Adcirca. I have been diagnosed with PAH for a while.When 1st diagnosed I thought it was not a big deal. After having major issues this past March, I got a lung doctor, put on Adcirca and had the lung tests. I’m following your blog and hope to find you on Twitter again. I have other health issues like to paint and have a blog too. I have a lot to learn about PH. My blog

    1. Hey!
      Oh my goodness, I totally thought I responded to this! I’m so sorry! You’re actually the first person I know of too that takes Adcirca. It seems to be helping me out so far and I hope the same for you. Yes, PH seems like no big deal but it is in fact a HUGE deal. I’m glad you are taking it seriously now! Thats great that you paint, and please keep doing that. Its so healthy for you! 🙂 My twitter link should be on the right side of my blog page! Keep in touch and keep blogging! 🙂

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