Life With PH


Sooo, I took a break from writing for just a bit to collect myself. But It’s spring break, I’ve definitely made time to post and I’m excited!

Oh caregivers. You don’t think much about them until you think about fighting this all on your own. Since I’m twenty years old I still need someone to help me swim in this sea of pills, prescriptions, doctors, bills and many other ridiculous things. Thank goodness for my Dad who has helped me navigate things from day one. We may not always be the most cordial people to each other but at the end of the day he is who has raised me, he deals with sick people everyday and he knows exactly what I need mentally as well as physically.

My dad became a paramedic in the 80’s and has beyond excelled in it. He is a leader among others and he is definitely who you would want on the ambulance with you. It’s amazing to watch his technical smarts that I’ve grown up with but when I was diagnosed he put those things aside. He didn’t see me as a patient but as a daughter. He watched my symptoms unfold senior year and forced an appointment to finally figure out what was wrong. And ever since the diagnosis he has been right there through appointments, surgeries, medication changes and even there to kick some ex-boyfriend ass. (Go get ’em Dad.)


Dad back in the 80’s! Look at that hair. 🙂

Dad and I

Dad and I at graduation right before I was diagnosed. (2010)

I guess It’s crazy how much it would take to raise a child that had any disease, and I can’t imagine what it would be like to deal with on a day-to-day basis. Giving Rocco his pills and taking him to his vet stresses me out just thinking about it. Dad and I definitely have not had it all together and we have been learning from day one and will from the rest of our lives. It is a learning process for not only the patient but the caregiver. Bottom line, always appreciate who is around and who is helping. Even if you’re an adult you have a caregiver whether they are there to help financially, emotionally or physically… they are there. Acknowledge them, their help and thank them. It’s not easy seeing a loved one through this. Thanks Dad for everything you’ve done whether its new tires, food, pills and long trips to Houston. I looooove you. 🙂



1 thought on “Caregivers.”

  1. I’m so glad you have someone who is there for you always. Being that that person is your dad must feel like a double blessing. You are such a pretty young lady. Don’t ever lose your optimism and cheery outlook on life.

    P.S. Did you catch Justin Timberlake on SNL and the Jimmy Fallon Show? =o)

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