Just Breathe.

Guess who’s sick?!!

Good lordy y’all. Its been a ridiculous roller coaster of illness, and I’m quite ready to be done with it. The sore throat started up today along with the chills and aches. I get strep every year, so I guess my time is up.

Anyways! I hope y’all are getting ready to enjoy your holiday. Maybe I will, we will see. I hope its been a good PH Awareness month as well! You don’t have to move mountains to get people’s attention on this. Simply posting something on FB, telling a friend about the blog or the PH association website will do…Anything!! πŸ™‚ And if you have, thank you SOO much. My little project this year was t-shirts. On a lazy day in August I decided to paint a pair of lungs which turned out a lot better than I had planned. When figuring out what to put on the shirts this was of course a must. With over 50 orders, everything was processed and I got them in yesterday! I am so excited to see MY PAINTING on a shirt that so many people are wearing. Its super exciting.

This has been a very exhausting month, and we’ve scheduled a heart cath in January to see if I’m still reacting to treatment. I think people underestimate our exhaustion. We appear fine, and that’s the worst thing about PH. You look completely normal and for the most part I try to act it. But in reality I have to keep myself in check, realizing what I can and cannot do. Naps are necessary , and I should probably work on getting more sleep at night. But all in all, just know that with PH it’s the inside that really does count. We are sick people, it’s just not as obvious. This disease is tiring physically as well as mentally for sure. Accepting, learning, treatment…It all gets very old. Thank you so much for keeping up with the blog as well as taking time to learn about the disease itself!! Happy Thanksgiving y’all!! πŸ™‚

-haley.

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37 thoughts on “Just Breathe.

    • Hey Lena! I made a post last night “T-shirt Info” that will explain the ordering situation. Hopefully we can get it figured out so everyone can start ordering soon. Thanks so much for the kind words! Stay tuned to the blog! πŸ™‚
      -haley.

  1. You are an amazing young lady, Haley…I want to be the FIRST to buy one of your beautiful tshirts! I lost my beautiful daughter, Alexandria Beeson on April 17, 2012 to Pulmonary Hypertension ❀

    • Hey Jody! Wow thank you so much for the kind words and for finding me. I am very sorry for the loss of Alexandria and I hope you and your family are doing well. I made a post last night “T-shirt Info” that will explain the ordering situation. Hopefully we can get it figured out so everyone can start ordering soon. Thanks so much for the kind words. Stay tuned to the blog! πŸ™‚
      -haley.

    • Hey Pam! I made a post last night “T-shirt Info” that will explain the ordering situation. Hopefully we can get it figured out so everyone can start ordering soon. Thanks so much for the kind words! Stay tuned to the blog! πŸ™‚
      -haley.

  2. I LOVE THESE! Is there still a way to get one? Maybe I missed it? My dad had PH. I am thankful for those like you who are working toward finding out more and making more people aware! πŸ™‚

    • Hey Kimberly! Thank you so much for finding me! I made a post last night “T-shirt Info” that will explain the ordering situation. Hopefully we can get it figured out so everyone can start ordering soon. Thanks so much for the kind words! I wish the best for you and you’re family. Stay tuned to the blog! πŸ™‚
      -haley.

    • Hey Shanon! I made a post last night “T-shirt Info” that will explain the ordering situation. Hopefully we can get it figured out so everyone can start ordering soon. Thanks so much for the kind words! Stay tuned to the blog! πŸ™‚
      -haley.

    • Hey Amy! Thanks so much! I made a post last night “T-shirt Info” that will explain the ordering situation. Hopefully we can get it all figured out soon so everyone can order! Stay tuned to the blog! πŸ™‚
      -haley.

    • Hey Stacie! I made a post last night “T-shirt Info” that explains the ordering situation. Hopefully we can get it figured out soon so everyone can start to order. Stay tuned to the blog! πŸ™‚ Take care!!
      -haley.

    • Hey Amanda! Thanks so much for the kind words! I wish all the best to not only your nephew but to all of the family helping to PHight it as well. I made a post last night “T-shirt Info” that explained the ordering situation. Im hoping we will having it all figured out soon so everyone can start ordering! Stay tuned to the blog! Wishing you the best! πŸ™‚
      -haley.

  3. I was diagnosed in 2008 with primary pulmonary arterial hypertension. It definitely is an invisible disease where looks can be deceiving. Will you ever be marketing the tee shirts. My daughter would love to wear one in support.

    • Hey Heather! I definitely agree that this disease is invisible and so hard to diagnose! Its amazing to meet the victims that look “normal”. I made a post last night “T-shirt Info” that explained the ordering situation. Hopefully we can get it all figured out soon so everyone can order! Thanks so much for all the kind words and stay tuned to the blog for ordering. Wishing you the best!
      -haley.

    • Hey Tamara! I made a post last night “T-shirt Info” that will explain the ordering situation. Hopefully we can get it figured out soon so everyone will be able to order. Thanks so much and stay tuned to the blog! πŸ™‚
      -haley.

    • Hey Carla! I made a post last night “T-shirt Info” that will kind of explain the ordering situation. Hopefully we will get it figured out soon so everyone can start ordering! Thanks so much and stay tuned to the blog. πŸ™‚
      -haley.

  4. Hi Haley,

    First off I am wishing you all the best. My mother has PAH and I am aware of how much this disease affects the lives of those who are living with it. Secondly I LOVE your shirts and would like to know how I can order some. I’d like to order a few if possible. Please let me know! God bless.

    ~Alisa

    • Alisa,
      Thank you so much for the kind words! I hope you and your mother are dong well despite this tough battle. I made a post last night “T-Shirt Info” that kind of explains that I need to talk to the local company and the association to get things worked out so everyone will be able to order a lot easier than sending money to me, and processing the orders and then boxing them up and shipping them all out myself! But if we cant get something worked out than that’s what we will have to do. I promise it’ll get figured out soon though so everyone can order! Thank you so much and stay tuned to the blog! πŸ™‚
      -haley.

    • Hey Deb! I made a post last night “T-shirt Info” that explains that I need to talk to the local company and the association to get things worked out so everyone will be able to order a lot easier than sending money to me, and processing the orders and then boxing them up and shipping them all out myself! But if we cant get something worked out than that’s what we will have to do. I promise it’ll get figured out soon though so everyone can order! Thank you so much and stay tuned to the blog! πŸ™‚ Much love with your PHight against PH!!
      -haley.

    • Thanks so much Ryann! I made a post about the shirts “T-shirt Info” last night that explains that I need to talk to the local company and the association to get things worked out so everyone will be able to order a lot easier than sending money to me, and processing the orders and then boxing them up and shipping them all out myself! But if we cant get something worked out than that’s what we will have to do. I promise it’ll get figured out soon though so everyone can order! Thank you so much and stay tuned to the blog! πŸ™‚
      -haley.

  5. I was diagnosed with primary pulmonary hypertension in April ,1987. I was given two years. I,m still doing good. Keep positive honey! I want to purchase a shirt. I’ll wear it proudly I’m a large…let me know….Joy

    • Thank you so much Joy! Wow you have come much longer than just 2 years and I hope I can do the same. Thanks again for such kind words and for reading the blog. When we get the ordering situation figured out I will definitely update everyone on how to get one! Stay tuned to the blog. Thanks so much and take care! πŸ™‚
      -haley.

    • Hey Graeme!
      I made a “T-Shirt Info” post that kind of expained that I need to talk to the local company and the association to get things worked out so everyone will be able to order a lot easier than sending money to me, and processing the orders and then boxing them up and shipping them all out myself! But if we cant get something worked out than that’s what we will have to do. I promise it’ll get figured out soon though so everyone can order! Thank you so much and stay tuned to the blog! πŸ™‚
      -haley.

  6. Hey phenomenalhaley: I am sorry you are feeling well- love the T-shirt definitely want one. Let me know the price and how to order as soon as available. I have journeyed with PH since 2001.

    • Hey Janet! Thanks so much, I’m doing somewhat better lately! I hope you are doing ok with your PHight as well! Stay tuned to my blog to learn how to order later on. Thanks so much again for the support! πŸ™‚
      -haley.

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